Day Plus 326
03.03.2009
Hi Everyone,
I know I'm a slacker... I have been so busy and would not believe how time fly's. Well first I want to thank Aimee so much for anyone who does not know Aimee she has a beautiful son David who also had Wiskott Aldrich and Aimee you are always there for me, when I need you, so thank you from the bottom of my heart.
First James started school this year my boy is all grown up...(sad) but happy too he he he...
Zac hearing test came back looks like he is deaf in his left ear but right is ok with a tiny loss. Zac is due for his MRI this month 31st and while he is having this they will look at his ears too.
Zac bloods have been all over the place with him dropping his sugar levels who knows why any thoughts on why let me know please.
Zac is crawling now and his talking is no better still mum and dad but who can complain, best part is that he said mum first... he he he...
not much to say I'm waiting on a whole heap of test to still come so fingers cross.
ps everyone my blog has a no copy right so please don't use my photo's or info for any papers or mags or anything else not being rude only that we have had a mag company use this blog and copy my blog which has now printed it all over Australia and New Zealand and there is incorrect info and photos that should not have been used which has coursed a lot of problems here.Please I'm not trying to sound rude, so noone take it the wrong way..
Cheers Everyone I will post again this month once I know more
Susan
Welcome...I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows..
Wiskott Aldrich Syndrome is a immune and blood disease that effects the immune system the B and T cells, you have an increased susceptibility to Infections, Bleeding and Cancer,aswell as delevoping an autoimmune disease without a transplant, Wiskott Aldrich Syndrome (WAS) is potentially fatal.
Copy Right .. Do not use any of my blog for any reason Read Only.
Copy Right .. Do not use any of my blog for any reason Read Only.
Tuesday, March 3, 2009
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