Saturday 30th May 2009
Day Plus 414...
Been awhile everyone...
Time fly's.. It has been a hard month and no Zac is ok I think it has just sunk in I'm home and everything I went through. I have been visiting friends and catching up but I find that hard too there kids are well there kids are doing everthing they should be doing, but don't get me wrong I'm very proud of my boys but I wish sometimes I could just be NORMAL.. and have the normal life. Sometimes I just sit and stare and think what did I do that was so wrong to put my kids through this. Maybe I did nothing or maybe I did but I have to deal with cards I was dealt with. So Zac had his tests done on his development you know on everything and he came back between a 6 to 10 month old . Not bad for a child who spent so much time hospital. Zac is walking holding onto things he wont let go he has been doing it for about 4 weeks now but he shows no sigh in letting go yet..
A very big congrats to Kristy on her baby boy Jai he is so cute..
James loves school hmm wonder when that part will change not looking foward to the teenage years lucky I still have abit to go LOL..
Zac is still tube feeding we took him off it for a couple of weeks but he lost 2 kilos so he is back on tube feeds again gee wish I could lose 2 kilos over 2 weeks now I will take that diet LOL...
Till next time I hope everyone is well and Happy...
Susan
Welcome...I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows..
Wiskott Aldrich Syndrome is a immune and blood disease that effects the immune system the B and T cells, you have an increased susceptibility to Infections, Bleeding and Cancer,aswell as delevoping an autoimmune disease without a transplant, Wiskott Aldrich Syndrome (WAS) is potentially fatal.
Copy Right .. Do not use any of my blog for any reason Read Only.
Copy Right .. Do not use any of my blog for any reason Read Only.
Friday, May 29, 2009
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