29/11/2010
Day Plus +963

Ok I know it has been awhile I'm slack but heaps been happening.
Zac started child care for couple of hours a week and going well other than the crying everytime I leave I hate that part but LOVE the peace and quiet.
Zac speech is getting better and he is saying more words now which I just love to hear.
Zac has had a few colds and bugs so been fighting them off.
Zac eating is not so good he has stopped eating dinner and is going off breakfast but he loves his milk the doctor is not happy because he is drinking around 1 litre to 1 and 1/2 litres a day of milk and this can cause problems with his iron levels and something else in the blood when your having to much milk and not enough food. So today he was sent off for bloods to test all levels and how they are working. Zac had his CT Scan he ended up on oxygen for a few hours and dropped his heart rate twice no biggie so that was good for once. The results are in and the doctor says There is a small area where his Lung has Partialy collapse this will not heal. The area is small about three fingers wide and across. This area is not a major concern at this point which is soooo good to hear and what they would do for him he is already happening anyways he is on 2 puffers sometime steriods. The doctor said he will need regular scans to montior his lung so he does not get worse. This explains why Zac has a cough and cant get rid of it. If his cough, asthma gets worse or he starts with breathing issue the doctor will issue a emg scan. If the area gets worse bigger this can cause a few Complications or if it gets bad this can be life-threatening. There is a weakness in his lungs so he is more prome to getting colds and chest infections which could add more presser on his lungs which could lead to bigger problems on the lungs.. But the Doctors said his lungs are looking ok other than this small collapse part.
The doctors are going to see James in Feb and we are going to talk about if we should start treatment on James as he is not growing nor really putting weight on he only weighs 17kgs and is 8 in Jan... So fingers and toes cross James grows and Zac lungs stay the same and you know what I really do think Zac will be fine and nothing will happen because I think enough has happened in this family and it is time for some good to start happening..
Zac is still having speech and OT and Physico and early intervention as will start next year more classes of learning for him so hopefully he maybe may get to go to a normal school oh I hope so.
James is getting a teachers aids and a special tutor for next year to help him too.
Poor James is having problems in class and making Friends I wish i could take the aspergers away and make his life easier he gets so upset and cries because he has no friends to play with but he does not play with anyone at school so why are they going to come over to our house. It breaks my heart to see him like this he wants Friends soooo bad it is not funny he just does not know what to do. He did have one boy come over for a play but he does not want to be friends with James now after his visit and I thought it was going so well but James said he wont play at lunch time and When James rang him up he was very rude and hung up on James and poor little James just cried his heart out the next day the child told him not to call him or speek to him he only want to see what James house was like and what we had little SHIT of a Kid... There is another kid at school that is picking on James and twisting his arm back smashing his lunch and swearing at him he is the worse child at school and I wish they would get rid of him I dont care that childs needs to be out of way of hurting children.
Untill next time Be good Smile and Laugh
Cheers Susan

It is all happening here so Bring on Christmas and a Great New Year i Say...
When I get Zac Bloods back I will let you know and I will update on James when I see the doctor.

10/05/2010
PLUS +760

Hi Everyone,

We are still waiting on the CT Scan it just arrive in the hospital but waiting for it to be installed.
No News is Good News though..
James went in his cross country and came 15th out of 70 Boys so proud of him.
James has started back at OT and he is still having problems at school so we are thinking about moving schools next year to a school where there are students there that are totally normal and healthy but there are students there that stuffer learning problems and have Aspergers to like James. We are just not sure what to do any idea I would love to hear them.
Zac is still having mass behaviours problems he just does not understand and when you try to stop him he goes apes, we are waiting for his results on his assessment on his development..
Poor Zac ended up with 8 days of the runs he was so sick he was pooing every 5 Min's for a while as much as I don't like drugs it is a pity there is no drug out there to help little ones to stop them going to the toilet so much.
After Two Bone Marrow Transplant with my boys you think I could keep up but I was so tried and run down it wore me out..
Till Next Time Keep Smiling
Cheers

26/04/2010
Plus +746

Hi Everyone..

Stilling waiting for this CT Scan on his lungs.. Had a few issue last week Zac got a little cold and he ended up sick with both Lungs full put back on more drugs..
Had to take him to the GP Doctor who was upset because he did notknow what to give him because of his lungs.. What a week it nevers end nearly ended up in hospital so greatful we didn't.

Getting a little worried the doctors are all worried about his lungs they keep talking about this Fibrosis of the Lungs but not sure had a look on the internet, I hope it is not it sounds not very good .. So fingers and toes cross they are wrong just wish they would do this scan and hurry up..

Zac had another bad week he smashed all his meds out of the fridge and screamed when I tryed to take him away and tryed to fight me because I was taking him away it was so upsetting and when I tryed to tell him NO and he just laughed and clapped his hands and blew kisses.. He tryed to bite me and head butt me because I was taking him away from the fridge it was so bad and so so upsetting too.. What Kid blows kisses and clappes hands yelling Yah when he is in trouble..
When I know more about the tests I will let you know..
Bye for Now.

Happy Easter...

DAY PLUS + 723
03/04/2010

Hi Everyone,

Heaps has been happening Zac Lungs not the best he is having a Ct Scan as they want to see what is happening, he has had a cough for over 12 months and can't get rid of it. They said his lungs are NOT normal in shape or look he has scare tissue and he has from ICU Life support Lung issues and Fibrosis of the Lungs which we thought this would fix it self but looks like it is a lot worse.. Fingers Cross Please The doctors are worried so I'm hoping they are wrong.
We have also been told it looks like he has Brain Damage too and behind he nearly 3 now and they score him arouond 12 to 15 months..
I will let you know more in couple of weeks...
Please Pray for him..
Sending my Love and Prayers to the boys in transplant now...

See Ya till next time..
BE GOOD EVERYONE...