26/04/2010
Plus +746
Hi Everyone..
Stilling waiting for this CT Scan on his lungs.. Had a few issue last week Zac got a little cold and he ended up sick with both Lungs full put back on more drugs..
Had to take him to the GP Doctor who was upset because he did notknow what to give him because of his lungs.. What a week it nevers end nearly ended up in hospital so greatful we didn't.
Getting a little worried the doctors are all worried about his lungs they keep talking about this Fibrosis of the Lungs but not sure had a look on the internet, I hope it is not it sounds not very good .. So fingers and toes cross they are wrong just wish they would do this scan and hurry up..
Zac had another bad week he smashed all his meds out of the fridge and screamed when I tryed to take him away and tryed to fight me because I was taking him away it was so upsetting and when I tryed to tell him NO and he just laughed and clapped his hands and blew kisses.. He tryed to bite me and head butt me because I was taking him away from the fridge it was so bad and so so upsetting too.. What Kid blows kisses and clappes hands yelling Yah when he is in trouble..
When I know more about the tests I will let you know..
Bye for Now.
Welcome...I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows..
Wiskott Aldrich Syndrome is a immune and blood disease that effects the immune system the B and T cells, you have an increased susceptibility to Infections, Bleeding and Cancer,aswell as delevoping an autoimmune disease without a transplant, Wiskott Aldrich Syndrome (WAS) is potentially fatal.
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Copy Right .. Do not use any of my blog for any reason Read Only.
Monday, April 26, 2010
Saturday, April 3, 2010
Happy Easter...
DAY PLUS + 723
03/04/2010
Hi Everyone,
Heaps has been happening Zac Lungs not the best he is having a Ct Scan as they want to see what is happening, he has had a cough for over 12 months and can't get rid of it. They said his lungs are NOT normal in shape or look he has scare tissue and he has from ICU Life support Lung issues and Fibrosis of the Lungs which we thought this would fix it self but looks like it is a lot worse.. Fingers Cross Please The doctors are worried so I'm hoping they are wrong.
We have also been told it looks like he has Brain Damage too and behind he nearly 3 now and they score him arouond 12 to 15 months..
I will let you know more in couple of weeks...
Please Pray for him..
Sending my Love and Prayers to the boys in transplant now...
See Ya till next time..
BE GOOD EVERYONE...
03/04/2010
Hi Everyone,
Heaps has been happening Zac Lungs not the best he is having a Ct Scan as they want to see what is happening, he has had a cough for over 12 months and can't get rid of it. They said his lungs are NOT normal in shape or look he has scare tissue and he has from ICU Life support Lung issues and Fibrosis of the Lungs which we thought this would fix it self but looks like it is a lot worse.. Fingers Cross Please The doctors are worried so I'm hoping they are wrong.
We have also been told it looks like he has Brain Damage too and behind he nearly 3 now and they score him arouond 12 to 15 months..
I will let you know more in couple of weeks...
Please Pray for him..
Sending my Love and Prayers to the boys in transplant now...
See Ya till next time..
BE GOOD EVERYONE...
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