14Th April 2011
DAY PLUS +1100

Lets see its been a full on couple of months!!! we will start with James..

James...
James has had two addmission into hospital with some sort of virus that effects the lymph Nodes in his tummy his liver was a little enlarge and over the last nine months his eating has been poor to not eating. In the last 5 to 6 months he lost 5kg he is has now gained half kilo and sitting inbetween 19 to 20kg and he is 8 years old... The doctors have said that if he drops another one to two kilo they will stick a nose tube down and admin him to force feed him. That has scared him to death the poor little boy and he is trying so hard to eat.

The School held a meeting about all his time off already this year it makes no differents that I have doctors letters stating that he had a bone marrow transplant and was born premmy and he has Med problems nope not one bit.. The school also knock him back for a teachers aid even though James has Aspergers and is IM too but hay we have had 3 doctors test James for Aspergers and IM and all say he has it the school even did the test last year but they have said this year we think he is fine and he is a above grade student and does not need a teachers aid and we dont agree with IM or Aspergers anymore. I felt like a some dumb ass mum walking out of the meeting but one week later the tests are back and all marking for this term are in and the school called me in for another meeting this time to tell me James is so far behind that they are going to have to go back to year one work with him and if he does not get that then back to kindergarden work. There was no sorry to me only that it was only now they could see the problem and OH he needs a teachers aid and a aid for his socialing as he does not social with other kids Bloody School and there councilor has tested James and believes and backs me that he has 100% Aspergers and is IM and Maybe we want to look at a different school for him... So I rang the ED Deptarment on the School and they are BIG BIG BIG trouble Oh yeah Love It!!! You see I should have only needed the one result from the first doctor that SIGNED a Legal Report stating my child has Aspergers and is IM and that should have been Heaps to get him a teachers AID... 3 Years later and I finally am getting some bloody help now I have to fill out all the paperwork again and re apply and because the year has started I may have to wait awhile for a teachers aid to pass for the funding...
James has been having the worse melt downs and to be truth ful I'm so over it so tried of the outbursts it wears me out somenight. His Asthma has been playing up in 3 months he has had 2 attacks and 3 start up little ones the other night I thought we would have to call the hospital and get him in there...
James has started a mathletic and spelldrome computer program for him with his learning problems too.

Zac
Were to start!!! Hmmm Thinking.. ok so his last lot of bloods showed his levels are down in vitiams and his platelets were a little down but ok 150 still fine though. His tests have come back this year showing no improvement in his delayments so he is still highly Globe Deleveopment Delayed but I dont agree I see the improvement stuff them I say.. He is having early intervention now 2 days a weeks for 2 hours a day and the speach is worried about him and has got him in DADHC which is age and disability services as a Urgent so hopefully we will start to get some extra help. They are worried about his speach and undestanding and he does not sleep and his bad bahaviour and she feels he is a little Obsessive Compulsive in some things not many though I dont Believe the obsessive Compulsive I only see that in maybe one or two things not a everyday thing.. Who Knows... Zac got another cold and another chest infection it last 5 weeks to clear and he still has little there but nearly all gone now
Zac is still having around 1 to 2 litres of milk a day and not eating much food but hay at least he is having milk they say...

Well i hope everyone is well and happy and doing Good
Till Next time
See Ya
Susan