Monday 13th July 2009
Day Plus 458

Hello Everyone.. I have had a packed month I had a baby shower for my sister inlaw at my house and my other sister inlaw also had a baby shower two sisters pregnant together and both having boys and they are three days apart, I can only wish them the best on a safe and healthly babys boys... I also started a part time job just on saturday mornings, don't know how it will go or if it will last but it gets me out of the house and earns a extra bit of pocket money. Which is always welcome in my house. I have had the flu for three weeks and was tested for whooping cough it came back that I did not but I can't help think that I may have as they still placed me on the drugs clarithromycin which treats whooping cough and with in three days a was better and my cough was almost gone. We all have been sick with a bug aswell. I was so sick and both James and Zac had it too that Troy had to come home from work only to see he started to get sick 2 hours later.
We got an letter from the school the other day we thought James was in trouble but he was been awarded for doing so well in school and he is only just started this year Wow. I'm so proud of him my little shinning star.
Zac has been ok still tube feed but he can't seem to knock this cold he has had it for about 2 months on and off with a cough too. Zac is walking now and walking everywhere it is so good to see but he is still not talking any more words only Mum Dad Nan and Bub but Troy believes he said Ball on the weekend but I have no heard it and Troy can't him to say it again oh well it will come. Any idea on teaching Zac to talk would be helpful my friends anything, but I think he will not talk much till they help with his hearing I wish my doctor would pull his finger out and hurry up with an appointment.
I will keep you updated on hiis hearing and feeding again soon till them
BYE and be safe...
Susan

Saturday 30th May 2009
Day Plus 414...

Been awhile everyone...
Time fly's.. It has been a hard month and no Zac is ok I think it has just sunk in I'm home and everything I went through. I have been visiting friends and catching up but I find that hard too there kids are well there kids are doing everthing they should be doing, but don't get me wrong I'm very proud of my boys but I wish sometimes I could just be NORMAL.. and have the normal life. Sometimes I just sit and stare and think what did I do that was so wrong to put my kids through this. Maybe I did nothing or maybe I did but I have to deal with cards I was dealt with. So Zac had his tests done on his development you know on everything and he came back between a 6 to 10 month old . Not bad for a child who spent so much time hospital. Zac is walking holding onto things he wont let go he has been doing it for about 4 weeks now but he shows no sigh in letting go yet..
A very big congrats to Kristy on her baby boy Jai he is so cute..
James loves school hmm wonder when that part will change not looking foward to the teenage years lucky I still have abit to go LOL..
Zac is still tube feeding we took him off it for a couple of weeks but he lost 2 kilos so he is back on tube feeds again gee wish I could lose 2 kilos over 2 weeks now I will take that diet LOL...
Till next time I hope everyone is well and Happy...
Susan

Day Plus 326
03.03.2009

Hi Everyone,
I know I'm a slacker... I have been so busy and would not believe how time fly's. Well first I want to thank Aimee so much for anyone who does not know Aimee she has a beautiful son David who also had Wiskott Aldrich and Aimee you are always there for me, when I need you, so thank you from the bottom of my heart.
First James started school this year my boy is all grown up...(sad) but happy too he he he...
Zac hearing test came back looks like he is deaf in his left ear but right is ok with a tiny loss. Zac is due for his MRI this month 31st and while he is having this they will look at his ears too.
Zac bloods have been all over the place with him dropping his sugar levels who knows why any thoughts on why let me know please.
Zac is crawling now and his talking is no better still mum and dad but who can complain, best part is that he said mum first... he he he...
not much to say I'm waiting on a whole heap of test to still come so fingers cross.
ps everyone my blog has a no copy right so please don't use my photo's or info for any papers or mags or anything else not being rude only that we have had a mag company use this blog and copy my blog which has now printed it all over Australia and New Zealand and there is incorrect info and photos that should not have been used which has coursed a lot of problems here.Please I'm not trying to sound rude, so noone take it the wrong way..

Cheers Everyone I will post again this month once I know more
Susan