13th January 2011
Day Plus +1008
I hope everyone had a great christmas and good New Year.
Zac Bloods are back it shows a Vitamin Deficiency and Vitamin C Deficiency we have place him on a Vitamin Deit to see if we can change this and we will re do bloods in 4 weeks to see if there is change. If not any change not sure what they will do still in talks as this could start to effect his liver again and cause some more problems. Zac Skin has been flaring up bad again ...It just never stops.
Zac starts back at early intervenation in Feb 2011 too very happy for him to be getting some good help.. Zac is still having speech and ot and physiotherapy too. Zac behaviour is not so good he threw a a steak knife at his couz the other day and laughed he has no understanding of good and bad witch makes things hard.. Zac has been pretty much the same still running nose and cough due for another lung Xray in Feb 2011. Zac sleeping is no better if not worse he is now going to bed around 7pm back up by 10pm and not going back to sleep till 3am to 5am back up by 6.30 to 7.30am I just wish he would sleep. The doctors are talking about putting him on drugs to calm him down but I'm not too sure about this as they have enough drugs. Zac Drugs intake in down to 5 Drugs now Woo Woo...
James is not growing and the doctors are getting worried about his growth so they are letting him go till Feb 2011. If he has not gained weight he will have to start growth hormone shoots, so here hoping he grows and puts weight on.... James is still getting bone pain but they dont know totally why other than they think it has to do with the bone marrow growth.. He has being having a few ups and downs of late when will they come up with a magic pill with Aspergers.. He gets a teachers Aid this year YES so happy and a Tutor to help him. So So So Happy about this.
On another note we are thinking and sending all our love to our Aussies QLD's People who are caught in the Floods.. To All my Family and Friends there be safe look after yourselfs we can ReBuild anything but we cant Rebuild YOU so be Safe...
I Hope Jacob's Family does not mine but I'm sending out to you and your family a big Hug Lots of Love and prayering that Little Jacob is back on this feet in No Time and you are back to Normal Life again.... You can see Jacobs Journey on my Blog..
Till Next Time
Take Care Everyone and Be Safe... xxx
Wednesday, January 12, 2011
Monday, November 29, 2010
29/11/2010
Day Plus +963
Ok I know it has been awhile I'm slack but heaps been happening.
Zac started child care for couple of hours a week and going well other than the crying everytime I leave I hate that part but LOVE the peace and quiet.
Zac speech is getting better and he is saying more words now which I just love to hear.
Zac has had a few colds and bugs so been fighting them off.
Zac eating is not so good he has stopped eating dinner and is going off breakfast but he loves his milk the doctor is not happy because he is drinking around 1 litre to 1 and 1/2 litres a day of milk and this can cause problems with his iron levels and something else in the blood when your having to much milk and not enough food. So today he was sent off for bloods to test all levels and how they are working. Zac had his CT Scan he ended up on oxygen for a few hours and dropped his heart rate twice no biggie so that was good for once. The results are in and the doctor says There is a small area where his Lung has Partialy collapse this will not heal. The area is small about three fingers wide and across. This area is not a major concern at this point which is soooo good to hear and what they would do for him he is already happening anyways he is on 2 puffers sometime steriods. The doctor said he will need regular scans to montior his lung so he does not get worse. This explains why Zac has a cough and cant get rid of it. If his cough, asthma gets worse or he starts with breathing issue the doctor will issue a emg scan. If the area gets worse bigger this can cause a few Complications or if it gets bad this can be life-threatening. There is a weakness in his lungs so he is more prome to getting colds and chest infections which could add more presser on his lungs which could lead to bigger problems on the lungs.. But the Doctors said his lungs are looking ok other than this small collapse part.
The doctors are going to see James in Feb and we are going to talk about if we should start treatment on James as he is not growing nor really putting weight on he only weighs 17kgs and is 8 in Jan... So fingers and toes cross James grows and Zac lungs stay the same and you know what I really do think Zac will be fine and nothing will happen because I think enough has happened in this family and it is time for some good to start happening..
Zac is still having speech and OT and Physico and early intervention as will start next year more classes of learning for him so hopefully he maybe may get to go to a normal school oh I hope so.
James is getting a teachers aids and a special tutor for next year to help him too.
Poor James is having problems in class and making Friends I wish i could take the aspergers away and make his life easier he gets so upset and cries because he has no friends to play with but he does not play with anyone at school so why are they going to come over to our house. It breaks my heart to see him like this he wants Friends soooo bad it is not funny he just does not know what to do. He did have one boy come over for a play but he does not want to be friends with James now after his visit and I thought it was going so well but James said he wont play at lunch time and When James rang him up he was very rude and hung up on James and poor little James just cried his heart out the next day the child told him not to call him or speek to him he only want to see what James house was like and what we had little SHIT of a Kid... There is another kid at school that is picking on James and twisting his arm back smashing his lunch and swearing at him he is the worse child at school and I wish they would get rid of him I dont care that childs needs to be out of way of hurting children.
Untill next time Be good Smile and Laugh
Cheers Susan
It is all happening here so Bring on Christmas and a Great New Year i Say...
When I get Zac Bloods back I will let you know and I will update on James when I see the doctor.
Day Plus +963
Ok I know it has been awhile I'm slack but heaps been happening.
Zac started child care for couple of hours a week and going well other than the crying everytime I leave I hate that part but LOVE the peace and quiet.
Zac speech is getting better and he is saying more words now which I just love to hear.
Zac has had a few colds and bugs so been fighting them off.
Zac eating is not so good he has stopped eating dinner and is going off breakfast but he loves his milk the doctor is not happy because he is drinking around 1 litre to 1 and 1/2 litres a day of milk and this can cause problems with his iron levels and something else in the blood when your having to much milk and not enough food. So today he was sent off for bloods to test all levels and how they are working. Zac had his CT Scan he ended up on oxygen for a few hours and dropped his heart rate twice no biggie so that was good for once. The results are in and the doctor says There is a small area where his Lung has Partialy collapse this will not heal. The area is small about three fingers wide and across. This area is not a major concern at this point which is soooo good to hear and what they would do for him he is already happening anyways he is on 2 puffers sometime steriods. The doctor said he will need regular scans to montior his lung so he does not get worse. This explains why Zac has a cough and cant get rid of it. If his cough, asthma gets worse or he starts with breathing issue the doctor will issue a emg scan. If the area gets worse bigger this can cause a few Complications or if it gets bad this can be life-threatening. There is a weakness in his lungs so he is more prome to getting colds and chest infections which could add more presser on his lungs which could lead to bigger problems on the lungs.. But the Doctors said his lungs are looking ok other than this small collapse part.
The doctors are going to see James in Feb and we are going to talk about if we should start treatment on James as he is not growing nor really putting weight on he only weighs 17kgs and is 8 in Jan... So fingers and toes cross James grows and Zac lungs stay the same and you know what I really do think Zac will be fine and nothing will happen because I think enough has happened in this family and it is time for some good to start happening..
Zac is still having speech and OT and Physico and early intervention as will start next year more classes of learning for him so hopefully he maybe may get to go to a normal school oh I hope so.
James is getting a teachers aids and a special tutor for next year to help him too.
Poor James is having problems in class and making Friends I wish i could take the aspergers away and make his life easier he gets so upset and cries because he has no friends to play with but he does not play with anyone at school so why are they going to come over to our house. It breaks my heart to see him like this he wants Friends soooo bad it is not funny he just does not know what to do. He did have one boy come over for a play but he does not want to be friends with James now after his visit and I thought it was going so well but James said he wont play at lunch time and When James rang him up he was very rude and hung up on James and poor little James just cried his heart out the next day the child told him not to call him or speek to him he only want to see what James house was like and what we had little SHIT of a Kid... There is another kid at school that is picking on James and twisting his arm back smashing his lunch and swearing at him he is the worse child at school and I wish they would get rid of him I dont care that childs needs to be out of way of hurting children.
Untill next time Be good Smile and Laugh
Cheers Susan
It is all happening here so Bring on Christmas and a Great New Year i Say...
When I get Zac Bloods back I will let you know and I will update on James when I see the doctor.
Monday, May 10, 2010
10/05/2010
PLUS +760
Hi Everyone,
We are still waiting on the CT Scan it just arrive in the hospital but waiting for it to be installed.
No News is Good News though..
James went in his cross country and came 15th out of 70 Boys so proud of him.
James has started back at OT and he is still having problems at school so we are thinking about moving schools next year to a school where there are students there that are totally normal and healthy but there are students there that stuffer learning problems and have Aspergers to like James. We are just not sure what to do any idea I would love to hear them.
Zac is still having mass behaviours problems he just does not understand and when you try to stop him he goes apes, we are waiting for his results on his assessment on his development..
Poor Zac ended up with 8 days of the runs he was so sick he was pooing every 5 Min's for a while as much as I don't like drugs it is a pity there is no drug out there to help little ones to stop them going to the toilet so much.
After Two Bone Marrow Transplant with my boys you think I could keep up but I was so tried and run down it wore me out..
Till Next Time Keep Smiling
Cheers
PLUS +760
Hi Everyone,
We are still waiting on the CT Scan it just arrive in the hospital but waiting for it to be installed.
No News is Good News though..
James went in his cross country and came 15th out of 70 Boys so proud of him.
James has started back at OT and he is still having problems at school so we are thinking about moving schools next year to a school where there are students there that are totally normal and healthy but there are students there that stuffer learning problems and have Aspergers to like James. We are just not sure what to do any idea I would love to hear them.
Zac is still having mass behaviours problems he just does not understand and when you try to stop him he goes apes, we are waiting for his results on his assessment on his development..
Poor Zac ended up with 8 days of the runs he was so sick he was pooing every 5 Min's for a while as much as I don't like drugs it is a pity there is no drug out there to help little ones to stop them going to the toilet so much.
After Two Bone Marrow Transplant with my boys you think I could keep up but I was so tried and run down it wore me out..
Till Next Time Keep Smiling
Cheers
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