Wiskott Aldrich Syndrome is a immune and blood disease that effects the immune system the B and T cells, you have an increased susceptibility to Infections, Bleeding and Cancer,aswell as delevoping an autoimmune disease without a transplant, Wiskott Aldrich Syndrome (WAS) is potentially fatal.
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Tuesday, August 18, 2009

Tuesday 18th August 2009
Plus Day 494

Hello Everyone,
Just a quick note, Zac will be having his GFR on Monday so we find out how well his kidneys are working Fingers Cross.. Still Tube feed but trying to get him off it so fingers cross again.. Zac has a appointment in Sept with the hearing doctor so we will find out what they are going too do I begged NO cochlear just an aid pleaseeeee...
James results are back on his IQ and development test well it is Asperger's ( which is a form of autism ) who would have thought oh well just throw another one at me.. James is ok he can talk and live a normal live just needs help that is all. Back at John Hunter next week for appointments so don't want too, when does it all just stop and life get NORMAL. Just Over it all..
Very Important DAVID McNALLY has now reached 3 years post transplant, Party for David I think ... We are all thinking of you David and we hope that your GVHD clears up soon and you can be pain free and free from all the drugs.

I will let you know the results of Zac's GFR as soon as I get them.. Thanks to everyone who has been sending me emails very lovely of you...
Till Next Time "Smile" ...
Susan
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1 comment:

Aimee said...

Hi, Susan! Thanks for the comment about David's 3 yr anniversary. It's nice to hear how your son is doing and looking at the photos.

You are heading into summer. Do you have any summer plans? I hope you have a lovely spring/summer.

Take good care!

September 20, 2009 at 11:25 PM

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