13th January 2011
Day Plus +1008
I hope everyone had a great christmas and good New Year.
Zac Bloods are back it shows a Vitamin Deficiency and Vitamin C Deficiency we have place him on a Vitamin Deit to see if we can change this and we will re do bloods in 4 weeks to see if there is change. If not any change not sure what they will do still in talks as this could start to effect his liver again and cause some more problems. Zac Skin has been flaring up bad again ...It just never stops.
Zac starts back at early intervenation in Feb 2011 too very happy for him to be getting some good help.. Zac is still having speech and ot and physiotherapy too. Zac behaviour is not so good he threw a a steak knife at his couz the other day and laughed he has no understanding of good and bad witch makes things hard.. Zac has been pretty much the same still running nose and cough due for another lung Xray in Feb 2011. Zac sleeping is no better if not worse he is now going to bed around 7pm back up by 10pm and not going back to sleep till 3am to 5am back up by 6.30 to 7.30am I just wish he would sleep. The doctors are talking about putting him on drugs to calm him down but I'm not too sure about this as they have enough drugs. Zac Drugs intake in down to 5 Drugs now Woo Woo...
James is not growing and the doctors are getting worried about his growth so they are letting him go till Feb 2011. If he has not gained weight he will have to start growth hormone shoots, so here hoping he grows and puts weight on.... James is still getting bone pain but they dont know totally why other than they think it has to do with the bone marrow growth.. He has being having a few ups and downs of late when will they come up with a magic pill with Aspergers.. He gets a teachers Aid this year YES so happy and a Tutor to help him. So So So Happy about this.
On another note we are thinking and sending all our love to our Aussies QLD's People who are caught in the Floods.. To All my Family and Friends there be safe look after yourselfs we can ReBuild anything but we cant Rebuild YOU so be Safe...
I Hope Jacob's Family does not mine but I'm sending out to you and your family a big Hug Lots of Love and prayering that Little Jacob is back on this feet in No Time and you are back to Normal Life again.... You can see Jacobs Journey on my Blog..
Till Next Time
Take Care Everyone and Be Safe... xxx
Welcome...I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows..
Wiskott Aldrich Syndrome is a immune and blood disease that effects the immune system the B and T cells, you have an increased susceptibility to Infections, Bleeding and Cancer,aswell as delevoping an autoimmune disease without a transplant, Wiskott Aldrich Syndrome (WAS) is potentially fatal.
Copy Right .. Do not use any of my blog for any reason Read Only.
Copy Right .. Do not use any of my blog for any reason Read Only.
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1 comment:
Hi There Susan,
I hope you are ok you are so strong Even though we have not meet I take pride in having spoken to you and being able to share in your story. I hope Zac is ok and James here is to a good new year for you and the problems start to fall away and only good happens to you and your family.
Sally
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