Wiskott Aldrich Syndrome is a immune and blood disease that effects the immune system the B and T cells, you have an increased susceptibility to Infections, Bleeding and Cancer,aswell as delevoping an autoimmune disease without a transplant, Wiskott Aldrich Syndrome (WAS) is potentially fatal.
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Monday, May 10, 2010

10/05/2010
PLUS +760

Hi Everyone,

We are still waiting on the CT Scan it just arrive in the hospital but waiting for it to be installed.
No News is Good News though..
James went in his cross country and came 15th out of 70 Boys so proud of him.
James has started back at OT and he is still having problems at school so we are thinking about moving schools next year to a school where there are students there that are totally normal and healthy but there are students there that stuffer learning problems and have Aspergers to like James. We are just not sure what to do any idea I would love to hear them.
Zac is still having mass behaviours problems he just does not understand and when you try to stop him he goes apes, we are waiting for his results on his assessment on his development..
Poor Zac ended up with 8 days of the runs he was so sick he was pooing every 5 Min's for a while as much as I don't like drugs it is a pity there is no drug out there to help little ones to stop them going to the toilet so much.
After Two Bone Marrow Transplant with my boys you think I could keep up but I was so tried and run down it wore me out..
Till Next Time Keep Smiling
Cheers

2 comments:

Anonymous said...

Your Story makes me feel like crying. Your story also makes me smile to see that there is still wonderful parents out there doing what they should be doing. Loving your Child. You have much strength more than me Lady Susan. I hope both your boys are doing doing well and your life gets better..
Your boys are blessed to have a mother like you as you are blessed to have two strong boys too.

Anonymous said...

Hi MRS S...
I can see your month is still up and down..
I'm Thinking of you but we all know you by now Mrs S never giving up never tacking NO for the answer.
I hope Zac's CT Scan comes soon and it shows NOTHING for you mate.
Cheers my special friend
KD Lang... LOL

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