Hi Everyone,
Day Plus 165
29th September 2008
Well Its been a month sorry. So much has happened around here, where to start. First Zac has been on gate leave which is I can stay at Rondal Mac House with Zac so I did that ok and that was fun then on Saturday which was the 27th Which is ZAC's BIRTHDAY my docotor discharged Zac from the Hospital so I'm still at Rondal House and I go up to the Hospital everyday for Bloods looks like I might be home in a week or two.. I can't wait 8 months in hospital is long enough Zac is on 13 different type of meds but I can deal with that.
Zac Birthday was great both his aunty's came and Uncles too his two nana's and a great Aunty it was great my nehews were there too but they could not come near Zac which was a bit sad but they understood and stay outside playing, Such good boys they were. The other nana and pop came today oh Zac has three Nana's and two Pops and no they are not great. What can I say so many people love him. He got lots of Elmo stuff and he loved it.
Zac is still tube feed he will not eat but I'm trying everyday and he still has a damaged liver and kidneys and still on three types of high blood presser meds, but we will get there. I just can't wait to go home and I will deal with what ever happens from there. The OT department has had legs wraps with weights being made up for Zac's legs as he wont use them and can't stand and use them straight.
Please everyone our prayers goes out to Krystal and he beautiful boy that they get to go home soon too.
Welcome...I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows..
Wiskott Aldrich Syndrome is a immune and blood disease that effects the immune system the B and T cells, you have an increased susceptibility to Infections, Bleeding and Cancer,aswell as delevoping an autoimmune disease without a transplant, Wiskott Aldrich Syndrome (WAS) is potentially fatal.
Copy Right .. Do not use any of my blog for any reason Read Only.
Copy Right .. Do not use any of my blog for any reason Read Only.
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1 comment:
My son had a successful BMT in 2005 for WAS. We have never met anyone else who has Wiskott Aldrich. Even in our large city of Houston Texas. If I can support you in any way please let me know.
Kathy
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