Wiskott Aldrich Syndrome is a immune and blood disease that effects the immune system the B and T cells, you have an increased susceptibility to Infections, Bleeding and Cancer,aswell as delevoping an autoimmune disease without a transplant, Wiskott Aldrich Syndrome (WAS) is potentially fatal.
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Saturday, October 11, 2008

ZAC IS BACK!!!










DAY PLUS 179


11/10/2008




Hi There Everyone...


The Photo's are of Zac FIRST BIRTHDAY down at the Unit in RM House thanks to the Doctors letting us down there for his birthday.


Zac is back in Hospital, what can I say we got out of hospital ward down to RM House on the hospital grounds for 5 days it was nice but Zac got sick and was put back in the ward. Zac has Staph and Ear infection and a bowel infection plus a rash, Yes the rash looks like the GVHD has flared back up. I have not been been home yet I have not seen home since Feb 2008 8 months and counting he he he....


Zac still smiles everyday though, thats my boy, I bread them tough.


James is such a loving brother he just dotes on Zac and Zac he just laps it up. James was a little upset this week with Zac back in the ward and I brought up a toy to Zac that Troy's mum brought him but James has been minding it for him and james did not want to share, so we had to go through the sharing is caring game. James spent alot of time last weekend in the starlight room he was singing and making cards for everyone. James is growing up so much it is hard to believe that my little boy is a big boy now and it is funny but you think back to all the hard times I had with James in transplant and not knowing if he was going to make it and look at him now he is such a cutie full of life and cheek boy that boy is full of cheek, but I dont mine he is learning to make his way in this world and he is doing a good job. I'm very proud of James he is a tough boy...


Remember dont loose faith you never know whats around the corner.
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2 comments:

Anonymous said...

What a great day for you Susan. I was thinking of your family and hoped that it would be a fantastic day for you all. I hope that he continues to fight. Who knows one day he could be as cheeky as James!!!! cheers Karen W

Anonymous said...

looks like you had a lovely day! so good to see you all out of the hospital! take care, claire (icu) xx

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