5th November 2008
Day Plus 205
Hi Everyone.
Well Zac had his Operation Today for the feeding Button, I think this will take a bit to get use too thats for sure. It went well anyway it took a little longer than it should but he is okay very sore. Poor little boy, lost count on how many operations he has had now getting over it. They also did a bowel biospy as they are starting to think maybe gvhd in the bowel. Well some of the doctors think it is some are not sure, so we well see. Can't believe it is Day 205+ dont time fly when your not having a ball. It has been longer that 205 anyway as I was here since Feb 2008 so I'm so over it. Well thats my update only a quick update I will let you know when his results are back.
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Susan, was your other son on steroids? The doctors want to have a consultation with my husband and I about what medical options we have with David's treatment. They would like to wean him off steroids by trying other things. I'm not sure what they are thinking of trying. I'm afraid that any new interventions will be difficult for his body. They are not talking about using more topical ointments. I believe they want to try more aggressive interventions. I feel lost, sad, and upset. Was there a point when you had to recosider your previous son's treatment? David's current treatment is not working well but I'm not thrilled to talk about any other options.
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