Wiskott Aldrich Syndrome is a immune and blood disease that effects the immune system the B and T cells, you have an increased susceptibility to Infections, Bleeding and Cancer,aswell as delevoping an autoimmune disease without a transplant, Wiskott Aldrich Syndrome (WAS) is potentially fatal.
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Tuesday, December 2, 2008

Day Plus 235
2nd Dec 2008

Hi There everyone I'm HOME HOME HOME HOME HOME HOME HOME.....
I came home on Day Plus 218 Tuesday the 18th of November 2008....
I have spent 39 weeks and 5 days in hospital all up...

Zac is ok he is still on 10 different drug including blood pressure drugs and sorry been so busy that why no blogs for a while. Zac is getting worse by the day though it looks like his GVHD of the bowel so the doctors are going to talk to me on thursday so looks like back on the steriods. Great!!!
Being home is so nice, it is like coming to a new house. James loves having me home, I didn't tell him I just turned up he was so happy he thought I was a dream. James asked his Aunty if I was a dream... poor little boy...

Zac has still got his button in his tummy and feed 18 hourly but he has been having tiny bits of food and took his very first slip of drink last week but only done it once more than that. But it is bit by bit day by day.

Zac has settled down being home, which I was a bit worried about but nothing to worry about, he is now rolling on his tummy now but can't roll back yet he is also straighting his legs a bit now so when I pick him up he will sometimes only sometimes put his legs straight down.

Bye Bye Now will update you on GVHD...

1 comment:

Aimee said...

Welcome back home. I hope the steroids help the bowels. It's a bit by bit journey, isn't. Thanks for giving me hope and courage.

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