8/01/2009
Happy New Year Everyone!!! I hope everyone had a lovely christmas and a safe new year... Here's to a healthy Safe New Year!!! Well I have been home now for 6 weeks and loving it, it was so nice to be home for christmas Zac had a great day and James was so tried by lunch he fell alseep for a while... James birthday is comming up and i feel for him as i can't have party for him because of Zac hopefuly soon Zac will be out and about with everyone. James also starts SCHOOL this year oh so sad my baby is growing up but so happy too. My doctor is away on holidays at the moment and I wish he was back, Zac bloods have been up and down he keeps dropping his platelets and his urea has been climbing up. Zac blood pressure is still high and to top off that they found a lump a growth in Zac ear and they have no idea what it is, I'm just staying cool and hoping it is nothing FINGERS CROSS. I can't say on Zac about starting steriods or not as one my doctor is away and two the poo has changed into a green paste. Lovely !!! Zac is having MRI in March to check for damage as his last MRI showed fluid around the brain and shrinkage of the brain. That's it for me now have a good one everyone till next time Have a safe one BYE....
James Last Day at Preschool
Zac
Smiling Zac Zac
Me with Bronte
Margaret Troys Mum (NANA) and James
James and Me Hi Five Zac
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5 comments:
Hi Suz's
Say hello to James and everyone be home soon Love ya
Bronte
Hey suz
missing u already.....
have u got all of james uniforms for school yet?
how is zac do u no what the lump in zac's ear is, and do you no if he has brain damage yet... missing u all love bronte
Hello Susan,
I have read your blog and have followed Zac's path which has been a long and hard for you I can see. I'm so happy that you are home with your little boy. I hope everything turns out ok for you and your family. Just wanting to let you know that our family is always thinking of you and you are in our prayers everyday.
Beth
Just crying my eyes out after visiting your blog and hearing LeAnn Rimes sing "How Do I live Without You." I think I'll use that for David's next birthday video. Hope you all are doing well. Haven't seen an update in a long time.
Aimee
www.davidmcnally.blogspot.com
Susan, for some reason I cannot find your email that you just sent me. I wanted to say that the doctors told me if a person does not fully engraft then WAS can return. Another reason for small platelets is that GVHD is getting really bad. I was told today that the spleen does not work as effectively when on long-term immunosuppressors and it can "chomp" some of the platelet off making them appear small. I have seen may people on my GVHD board who are having a hard time controlling their platelets when they have a GVHD flare up. Please email me again to let me know what the doctors say. You sounded really alarmed. I hope you got some answers and can share them with me.
Thank you for your friendship,
Aimee McNally
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