2nd June 2008
Day Plus 46!!! Zac is not taking to his tube feeds se wont suck the bottle and he is being sick on the nose tube feeds. We have try continues feeds not working and we have try the boluses feed every two hours but that was worse. What do you do? We are going to give him a break from the feeds for 2 or 3 days and see how he goes.
9th June 2008
Day Plus 53!!! I am so over being here. I want to go home. Zac is still not feeding we tried putting him back on the feeds but after a couple of hours he was back to being sick. Days here became so long, you don’t know half the time if it is day or night. Zac Platelets are good and his HB is great, Zac white cell count is going up every day, what more could you ask for.
Welcome...I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows..
Wiskott Aldrich Syndrome is a immune and blood disease that effects the immune system the B and T cells, you have an increased susceptibility to Infections, Bleeding and Cancer,aswell as delevoping an autoimmune disease without a transplant, Wiskott Aldrich Syndrome (WAS) is potentially fatal.
Copy Right .. Do not use any of my blog for any reason Read Only.
Copy Right .. Do not use any of my blog for any reason Read Only.
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