23rd June 2008
Day Plus 67!!! Zac is very unwell today and he has moved rooms so he is right next to the nurse’s desk. The transplant team have been in and have said if he does not start to improve soon or gets any worse we will be back to ICU. Come on my little boy. On Monday they sent him off for a CT scan but it did not show much, I wish I knew what was happening to him. His heart rate when he is sleeping is 190 and resp is 87. Fingers Cross he gets better. Zac has had a blood transfusion today. He is dropping some of his bloods.
26th June 2008
Day Plus 70!!! Zac tummy is huge and he has gained 567 grams in 12 hours, I have this feeling he is holding fluid again. His rates are back up again today and his tummy is about 54cm. He is also bringing up a little bit of blood. His platelets are dropping down again to they are down to 69, which is still good but a little worrying because they were 140. Hopefully all is going to be well.
29th June 2008
Day Plus 73!!! Zac is still sick, they have moved us up to another ward and boy I’m not happy about it. Zac should not be on other wards but our ward has closed down because of the Nora Virus and infection control have said that everyone has to leave, so they can clean the ward and then everyone can come back as long as they are not sick. Zac is crook he has fluid on the lungs and in the tummy his tummy is 58 and half cm. His heart is showing it is enlarge and they think but are not sure that he may have GVHD of the gut and bowel. There is talk about taking the samples they need tomorrow. Zac has also said his FIRST WORD and it was MUM yes MUM not dad it was MUM. Troy is happy but he is pushing the dad on him now and all he says back is MUM. I will let you know the results if it is GVHD oh and Zac has Staph infection again. Other than that he is ok and still smiling. That’s our boy.
Welcome...I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows..
Wiskott Aldrich Syndrome is a immune and blood disease that effects the immune system the B and T cells, you have an increased susceptibility to Infections, Bleeding and Cancer,aswell as delevoping an autoimmune disease without a transplant, Wiskott Aldrich Syndrome (WAS) is potentially fatal.
Copy Right .. Do not use any of my blog for any reason Read Only.
Copy Right .. Do not use any of my blog for any reason Read Only.
Subscribe to:
Post Comments (Atom)
FEEDJIT Live Traffic Feed
Information on Wiskott Aldrich Syndrome
Labels
- All Together (1)
- It is what is inside that counts. (1)
- Look and Believe in the Good (1)
- Remember there is always someone worse off so smile and get on with the day (1)
- Smile and the whole world (1)
- smile miracles do happen (1)
- TELL IT LIKE IT IS........ (1)
- The rash (1)
- Theres a Silver lining in every cloud (1)
- Whats on the inside that counts (1)
No comments:
Post a Comment