22nd and 23rd April 2008
Zac is sick temp of 40c. He looks so sick, poor little boy. He has been getting sicker and sicker by the minute. Zac has the platelet rash all over him the doctor here have said they have not quite seen it look this bad before. The rash has changed overnight it looks worse it looks like something from a horror film. Zac started to drop quite quickly today it was bit scarred. By 1pm Zac was rushed into ICU. The ICU doctor said he was going to put him on C-Pap and see how he went. They did a gas on him but it came back bad very bad and he was Tube and put on life support. Zac’s transplant doctor is away but the doctor who has been looking after him for the week showed us the two x-rays of his chest which were 2 hours apart. The first X-ray was clear one tiny little patch, but by the second one both were fill thick. Zac got some sort of blood infection and they say he is in a bad way and this is going to be fight for him. Zac can do this, I know he can.
26th April 2008
Day plus 9!!! Well you know there is going to be bad news when Zac Transplant doctor walks in when it’s her week off and it’s a Saturday. I was right telling you that feeling you get is not nice. Zac has gone into Acute Kidney Failure and it’s bad. Not only has his lungs fill one is starting to slowly collapse plus he also has VOD which is Veno-Occlusive disease, his liver is 9cm enlarge and still growing. So we have bad lungs Vod and Acute Kidney failure a blood infection and Zac is today positive 2500mls holding fluid. VOD is a potentially a serious liver problem whereby the vessels carrying blood through the liver becomes blocked. Zac is starting dialysis today they say it will be on for the next 2 to 3 days straight.
1st May 2008
Day Plus 14!!! Zac has come off dialysis today, he look like a million dollars so much better. Zac is doing better and his bloods are looking better too, hopefully he will not have to have dialysis again. Finger cross
2nd May 2008
Day Plus 15!!! Zac Potasmium which is known as (K) is very high and all his bloods to do with his kidneys are to, so back on the dialysis. Hopefully only for a day this time. Fingers cross again. Oh sorry Zac lungs are collapsing even more.
4th May 2008
Day Plus 17!!! Off the dialysis today and looking good. That’s my boy!!! Looks like Zac got Graft Versus Host Disease (GVHD). Which means a common complication of a transplant, caused by the donor’s immune cells killing the recipient’s healthy cells. There are two forms of GVHD Acute and Chronic. Acute GVHD occurs in the first 100 days after the transplant. Chronic GVHD develops more than 100 days after transplant. In Acute GVHD there is a grade system 1 to 4. One is being mild and four is being life threatening.
5th May 2008
Day Plus 18!!! Zac has had a bad night he has been Brady’s all night which is where you drop your heart rate and he was also dropping his oxygen where he was requiring more oxygen. This has been going on all day too. Zac has a staph infection too and a fungi infection. The liver is now 12cm enlarge. So we have two lungs fill of fluid one has collapsed there is the VOD of the liver and GVHD plus the Blood, Staph and fungi infection and acute kidney failure. I think that is enough now thanks.
6th May 2008
Day Plus 19!!! Zac has had another bad night and day he has arrested twice and been bagged more than 15 times. In one hour they bagged him 7 times, Zac is having these Brady’s where he is dropping the heart rate and oxygen. The heart rate gets down to the 50’s and his sats on his oxygen drops down to the 60’s. You have good days and bad days. This is a bad day. Back on dialysis today will be on it till tomorrow this is just a short one only on for 26 hours.
13th May 2008
Day Plus 26!!! Zac is doing a lot better. His lungs are starting to look better with each X-ray. I had a great day today WHY you ask? I got to have a nurse of Zac today, only a little one but it so special to hold your baby in your arms kiss him and cuddle him. He is still on the Ventilator but the doctors are starting to ween his requirement down, so hopefully he will off it soon in few days. Fingers cross people.
18th May 2008
Day Plus 31!!! I have asked the doctors to take Zac off the ventilator. Why you ask Zac is doing very well and he has been on it for 4 weeks now. My motto is let’s try worst comes to worse is they will have to put Zac back on the ventilator. So ICU agree, this afternoon we took out the tube. (The ICU said we had to do it now because Zac was costing them too much in electrically bills ha ha). Zac is coping very well still on oxygen but only 4 litres. Very happy only better days to come.
Zac is sick temp of 40c. He looks so sick, poor little boy. He has been getting sicker and sicker by the minute. Zac has the platelet rash all over him the doctor here have said they have not quite seen it look this bad before. The rash has changed overnight it looks worse it looks like something from a horror film. Zac started to drop quite quickly today it was bit scarred. By 1pm Zac was rushed into ICU. The ICU doctor said he was going to put him on C-Pap and see how he went. They did a gas on him but it came back bad very bad and he was Tube and put on life support. Zac’s transplant doctor is away but the doctor who has been looking after him for the week showed us the two x-rays of his chest which were 2 hours apart. The first X-ray was clear one tiny little patch, but by the second one both were fill thick. Zac got some sort of blood infection and they say he is in a bad way and this is going to be fight for him. Zac can do this, I know he can.
26th April 2008
Day plus 9!!! Well you know there is going to be bad news when Zac Transplant doctor walks in when it’s her week off and it’s a Saturday. I was right telling you that feeling you get is not nice. Zac has gone into Acute Kidney Failure and it’s bad. Not only has his lungs fill one is starting to slowly collapse plus he also has VOD which is Veno-Occlusive disease, his liver is 9cm enlarge and still growing. So we have bad lungs Vod and Acute Kidney failure a blood infection and Zac is today positive 2500mls holding fluid. VOD is a potentially a serious liver problem whereby the vessels carrying blood through the liver becomes blocked. Zac is starting dialysis today they say it will be on for the next 2 to 3 days straight.
1st May 2008
Day Plus 14!!! Zac has come off dialysis today, he look like a million dollars so much better. Zac is doing better and his bloods are looking better too, hopefully he will not have to have dialysis again. Finger cross
2nd May 2008
Day Plus 15!!! Zac Potasmium which is known as (K) is very high and all his bloods to do with his kidneys are to, so back on the dialysis. Hopefully only for a day this time. Fingers cross again. Oh sorry Zac lungs are collapsing even more.
4th May 2008
Day Plus 17!!! Off the dialysis today and looking good. That’s my boy!!! Looks like Zac got Graft Versus Host Disease (GVHD). Which means a common complication of a transplant, caused by the donor’s immune cells killing the recipient’s healthy cells. There are two forms of GVHD Acute and Chronic. Acute GVHD occurs in the first 100 days after the transplant. Chronic GVHD develops more than 100 days after transplant. In Acute GVHD there is a grade system 1 to 4. One is being mild and four is being life threatening.
5th May 2008
Day Plus 18!!! Zac has had a bad night he has been Brady’s all night which is where you drop your heart rate and he was also dropping his oxygen where he was requiring more oxygen. This has been going on all day too. Zac has a staph infection too and a fungi infection. The liver is now 12cm enlarge. So we have two lungs fill of fluid one has collapsed there is the VOD of the liver and GVHD plus the Blood, Staph and fungi infection and acute kidney failure. I think that is enough now thanks.
6th May 2008
Day Plus 19!!! Zac has had another bad night and day he has arrested twice and been bagged more than 15 times. In one hour they bagged him 7 times, Zac is having these Brady’s where he is dropping the heart rate and oxygen. The heart rate gets down to the 50’s and his sats on his oxygen drops down to the 60’s. You have good days and bad days. This is a bad day. Back on dialysis today will be on it till tomorrow this is just a short one only on for 26 hours.
13th May 2008
Day Plus 26!!! Zac is doing a lot better. His lungs are starting to look better with each X-ray. I had a great day today WHY you ask? I got to have a nurse of Zac today, only a little one but it so special to hold your baby in your arms kiss him and cuddle him. He is still on the Ventilator but the doctors are starting to ween his requirement down, so hopefully he will off it soon in few days. Fingers cross people.
18th May 2008
Day Plus 31!!! I have asked the doctors to take Zac off the ventilator. Why you ask Zac is doing very well and he has been on it for 4 weeks now. My motto is let’s try worst comes to worse is they will have to put Zac back on the ventilator. So ICU agree, this afternoon we took out the tube. (The ICU said we had to do it now because Zac was costing them too much in electrically bills ha ha). Zac is coping very well still on oxygen but only 4 litres. Very happy only better days to come.
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