31st July 2008
Day Plus 105
Zac results are in and they say Zac has reflux which I already knew, and that he has GVHD of the Liver and his Lungs are damage. So last night they started him on steriods to treat both. The ICU doctor said that in most cases there is a 80% success rate with using steriods for the lungs getting the childern off the ventilor but he said that Zac did not have the same percent he thought more around 50% which I am more than happy with. The poor little boy he is so puffy that when he has his eyes open it looks like they are closed you have to look real close and you see they are open. There was talk about putting on back on the hep filter again (diylsis) but so far no my nurse said today its not ruled out but so far he is going GOOD. So fingers cross people that these steriods are going to work and we it off the ventilor and go home. I can't wait maybe im wrong but feel inside at this point everything is going to be ok. I hope so that is.
Welcome...I have two beauitful Boys James 9 and Zac 5. Both were born with Wiskott Aldrich Syndrome, both have recevied a Cord Blood Transplant (Bone Marrow), James also has Aspergers. Here you can follow our family's story before, during and after Transplant and all our Highs and Lows..
Wiskott Aldrich Syndrome is a immune and blood disease that effects the immune system the B and T cells, you have an increased susceptibility to Infections, Bleeding and Cancer,aswell as delevoping an autoimmune disease without a transplant, Wiskott Aldrich Syndrome (WAS) is potentially fatal.
Copy Right .. Do not use any of my blog for any reason Read Only.
Copy Right .. Do not use any of my blog for any reason Read Only.
Thursday, July 31, 2008
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Information on Wiskott Aldrich Syndrome
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- Look and Believe in the Good (1)
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- TELL IT LIKE IT IS........ (1)
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- Whats on the inside that counts (1)
2 comments:
Hey Sues,
Zac is gonna be fine mate. Look how far he has come. He is a little fighter. They will get this fluid off him and get him off the vent. He is such a gorgous little boy. He is beautiful. You will have him home before you know it. Thinkin of ya mate. Wish we were still there with ya and with our little princess Skyla.
Luv Kristy, Joe, Blake and our angel in heaven SKYLA
Hi, i found you through David McNallys blog. My William had a successful tranpslant for WAS last year in london and we know just how fortunate we are (www.williamandthebmt.blogspot.com). I just wanted to say hello and say that we are hoping and praying for you and your boys.
love
Catherine Curtis
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